So many local families have serious challenges at the forefront of their minds, and the support of their friends, family and our community carries them through. Join the community of New Berlin in their support for Calyssa Richie a very brave 14 year-old girl with a limiting, lifelong illness requiring experimental medication and procedures. She’s been diagnosed with Fibrosing Mediastinitis. This is a rare disorder of Histoplasmosis causing pressure on all of her airways and her blood vessels to and from her heart. The compression has caused pulmonary hypertension, increased pressure in the chest. She’s had four heart catheterizations and two bronchoscopies as well as two trips to Mayo in Rochester MN and a trip to Boston Children’s Hospital Clinic. Listen to her Dad, Bill Richie, as he speaks about his daughter’s condition and the loving support of the New Berlin community. Their theme of HOPE 4 Calyssa: H.(Hold) O.(On) P(Pain) E. (Ends) is seen on t-shirts, bracelets, even the purple socks of the New Berlin Pretzels football team!
With research and travels the Richie family has talked to the most experience cardiologists in the world. Calyssa started treatment for an experimental medication that costs $30,000 per treatment every six months. Calyssa has not shown new mass growth with the treatment. The benefit will help for medical treatment of an ongoing chronic condition.
** Donations are still needed and accepted for this event! Comment here or email springfieldmoms.org@gmail.com if you’d like to contribute.
Join the Fundraiser November 1st at Secret Recipes’ Reception Center 3086 Normandy Drive, Springfield. Dinner from 4:00-6:00pm. Silent Auction, Live Auction at 7:00 pm. Cash bar, door prizes, 50/50 raffle, Kid/Teen tent with DJ,photo booth and games.
Friend Hope 4 Calyssa on facebook and stay in the loop!
